Abstract
Objective: The number of children with chronic diseases occurring in the childhood period increases each day. There are only a limited number of studies in Turkey addressing the emotional and behavioral problems and quality of life of children with chronic diseases. Therefore, this research aims to study the behaviors and quality of life of children with chronic diseases and provide recommendations.
Material and Methods: The study was conducted on children who were diagnosed with diabetes, epilepsy, and chronic renal failure and followed-up and treated at the Endocrinology, Neurology, and Nephrology clinics of the Ankara Pediatric Haematology, and Oncology Training and Research Hospital located in Ankara city centre, and on their mothers. The “General Information Form”, “Behavioral Assessment Scale for Children and Youth” and “Quality of life Scale for Children” were used as tools of data collection for the study.
Results:Ninety-three children with chronic diseases and their mothers were enrolled in the study. The percentages of girls and boys enrolled in the study were 53.8% and 46.2% respectively, where mean ages of girls and boys were 12.8±0.8 and 12.9±0.8 respectively. As regards the types of diseases of the participants, diabetes (46.2%) was followed by epilepsy (30.1%), and chronic renal failure (23.7%). It was found that the family type and the medical condition had a significant effect on both behavior and quality of life, whereas continuous use of medication and number of hospitalizations only had a significant effect on quality of life. The age group did not have a significant effect on the behavior or quality of life.
Conclusion: As a result of the research, it was determined that children with chronic diseases had a high rate of behavioral problems and a low quality of life. Furthermore, it was found that there was a negative significant relationship between the behavioral problems of children and their quality of life.
Keywords: Child behavior, Chronic disease
References
- 1. WHOQOL GROUP. The World Health Organization Quality of Life
- Assessment (WHOQOL): Development and General Psychometric
- Properties. Social Science and Medicine 1998;46:1569–85.
- 2. Çavuşoğlu H. Çocuk sağlığı hemşireliği Cilt I-II. Genişletilmiş 11.
- Baskı. Ankara: Sistem Ofset Basımevi, 2013.
- 3. Boekearts M, Roder I. Stress, coping and adjustment in children
- with a chronic disease: A review of the literature. Disabil Rehabil
- 1999;21:311-37.
- 4. Türkiye özürlüler araştırması. Ankara: Devlet İstatistik Enstitüsü
- Matbaası, 2004:51.
- 5. Törüner EK, Büyükgönenç L. Çocuk sağlığı ve temel hemşirelik
- yaklaşımları. Ankara: Göktuğ Yayıncılık, 2015.
- 6. Koudys J. Experiences of children with chronic illness: A qualitative
- evaluation of a children’s mental skills program (Unpublished
- Master Thesis). University of Ottova, 2001.
- 7. Yeo M, Sawyer S. Chronic Illness and Disability. BMJ 2005;330:721-
- 23.
- 8. Alçı E. Epilepsili çocukların okul yaşantısına ilişkin karşılaşılan
- güçlükler (Yüksek Lisans Tezi). Sivas: Cumhuriyet Üniversitesi,1996.
- [Erişim tarihi: 16.04.2018]
- 9. Yılmaz G. Kronik Hastalığı Olan İlköğretim Öğrencilerinin Aile Okul
- İlişkisi. Yüksek Lisans Tezi. Erzurum: Atatürk Üniversitesi,2008.
- [Erişim tarihi: 16.04.2018]
- 10. Hampel P, Rudolph H, Stachow R, Laß-lentzsch A, Petermann
- F. Coping among children and adolescents with chronic illness.
- Anxiety, Stress & Coping 2005;18:145-55.
- 11. Brijken M, Kerkhof MV, Dekker J, Schellevis FG. Comorbidity of
- chronic diseases. Qual Life Res 2005;14:45-55.
- 12. Lee LC, Harrıngto RA, Louıe BB, Newschaffer CJ. Children with
- autism: Quality of life and parental concerns. J Autism Dev Disord
- 2008;38:1147-60.
- 13. Phillips D. Quality of life. Concept, policy, practice. London and
- New York: Routledge, 2006.
- 14. WHOQOL GROUP. The World Health Organization Quality of Life
- Assessment (WHOQOL): Position paper from the World Health
- Organization. Social Science and Medicine, 1995;41:1403–9.
- 15. Akdemir N, Birol L. Kronik hastalıklar ve hemşirelik bakımı. İçinden:
- İç hastalıkları ve hemşirelik bakımı. 2. Baskı. Ankara: Sistem Ofset,
- 2005:193-9.
- 16. Fettahoğlu EÇ, Koparan C, Özatalay E, Türkkahraman D. İnsüline
- bağımlı diabetes mellitus tanılı çocuk ve ergenlerde gözlenen ruhsal
- güçlükler. Psychiatry in Turkey 2007;9:32-6.
- 17. Büyüköztürk Ş, Çakmak EK, Akgün ÖE, Karadeniz Ş, Demirel F.
- Bilimsel araştırma yöntemleri. 19. Baskı. Ankara: Pegem Akademi
- Yayınları, 2015.
- 18. Achenbach TM. Manual for the Child Behavior Checklist/4-18 and
- 1991 Profile. University of Vermont, Department of Psychiatry.
- Research Center for Children, Youth, and Families, Burlington VT,
- 1991.
- 19. Erol N, Arslan BL, Akçakın M. The adaptation and standardization of
- the child behavior checklist among 6-18 year-old Turkish children.
- In J. Sergeant Eunethydis: European Approaches to Hyperkinetic
- Disorder. Zurich: Fotoratar, 1995.
- 20. Achenbach TM, Rescorla LA. Manual for the ASEBA School-
- Age Forms & Profiles. University of Vermont, Research Center for
- Children, Youth, and Families, Burlington VT, 2001.
- 21. Dümenci L, Erol N, Achenbach TM, Şimşek Z. Measurement
- structure of the Turkish translation of the child behavior checklist
- using confirmatory factor analytic approaches to validation of
- syndromal constructs. J Abnorm Child Psychol 2004;32:335-40.
- 22. Erol N, Şimşek Z. Mental health of Turkish children: Behavioral
- and emotional problems reported by parents, teachers and
- adolescents. International Perspectives on Child and Adolescent
- Mental Health 2000;1:223-47.
- 23. Varni JW, Seid M, Dode CA. The PedQL: Measurement model for
- the pediatric quality of life inventory. Med Care 1999;37:126-39.
- 24. Memik NÇ, Ağaoğlu B, Çoşkun A, Üneri ÖŞ, Karakaya I. Çocuklar
- için yaşam kalitesi ölçeğinin 13-18 yaş ergen formunun geçerlik ve
- güvenirliği. Türk Psikiyatri Dergisi 2007;18:353-63.
- 25. Memik NÇ, Ağaoğlu B, Çoşkun A, Karakaya I. Çocuklar için yaşam
- kalitesi ölçeğinin 8-12 yaş çocuk formunun geçerlik ve güvenirliği.
- Çocuk ve Gençlik Ruh Sağlığı Dergisi 2008;15:87-98.
- 26. Field A. Discovering statistics using SPSS. London: Sage
- Publications, 2009;148.
- 27. Deniz Ü. Kronik hastalığı olan ve olmayan çocuklarda davranış
- problemlerinin incelenmesi (Doktora Tezi). Ankara: Ankara
- Üniversitesi, 2003.
- 28. Kapçı EG. Okul öncesi çocuklarda görülen duygusal davranışsal
- sorunların bazı değişkenler açısından incelenmesi. 2. Ulusal Çocuk
- Kültürü Kongresi, Ankara Üniversitesi Basımevi, 1999;164-9.
- 29. Birol L, Akdemir N, Bedük T. İç hastalıkları hemşireliği. 2. Baskı.
- Ankara: Sanem Matbaası, 1990:245-7.
- 30. Gümüş S, Kelekçi S, Yolbaşı İ, Gürkan F. Astımlı çocukların yaşam
- kalitelerinin değerlendirilmesi. JCAM 2012;3:178-81.
- 31. Gerson AC, Wentz A, Abraham AG, Mendley SR, Hooper SR,
- Butler RW, et al. Health – related quality of life of children with mild
- to moderate chronic kidney disease. Pediatrics 2010;125:349-57.